Tuesday, March 22, 2011

Reminder about the Great Strides Walk for Cystic Fibrosis on April 30!

This is Taylor King. She is 10 years old and has Cystic Fibrosis. She and my little guy Bode are buddies and we love her so much! I am not sure what we did before we knew Taylor and her family.

Here is a reminder about the Great Strides walk at Coral Canyon Elementary in Washington, Utah, on April 30th, 2011. Registration is at 9 am and the walk begins at 10 am. I hope to see you there!

Go here to make a donation, to join Talyor's team and for more information about the Great Strides walk in Southern Utah. With all the money we are saving with coupons, hopefully we can all give back a little to help Taylor!

Here is a letter that Taylor wrote about being a 10 year old living with Cystic Fibrosis:

This year I'd like to take part in my letter. I've decided to tell you what it's like to be a 10 year old with Cystic Fibrosis. Being a 10 year old with CF sometimes isn't fun. I have to do treatments every day, twice a day, have checkups every 3 months, and sometimes when it's not a good checkup I loose weight. I also have gotten polyps 3 times and have had to have surgery. Sometimes I want to just rip my lungs out, but I don't...I keep fighting.

Every time I go to a sleepover I have to bring all my treatments and it looks like I'm moving in. Luckily I have awesome friends and their families are awesome too so I never get made fun of. When I do my treatments at a friend's house it stops us from having as much fun, but if this is one of the things I have to do to keep me alive, I'll do it in a heart beat.

Sometimes actually I love my disease. When I go to my checkups, I sometimes get Snickers, candy, and all that good stuff to help me get to the 50% in weight. But that's not all. If I didn’t have this disease I wouldn't know all of my amazing doctors. I love them like family. If it weren’t for them, I wouldn't be typing this right now at all or not with a positive, CF will be cured, attitude.

This year my mom and dad would also like me to take part in the donation part. I'm a little scared but here it goes. Every year the CF foundation raises 100,000's of dollars. This year I know that times are tough but as we all know, every penny counts. If you donated 1 dollar to 1,000 dollars you need to know that EVERY bit counts. If it weren't for a lot of your donations, I possibly wouldn’t be here right now. So that's why this year I'm asking you to donate. Even if you donate 10 dollars, your helping doctors all over the world to getting 1 step closer to finding a cure for Cystic Fibrosis.

Thanks A Walk, Taylor


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