Monday, May 3, 2010

Send an e-gift and support the Cystic Fibrosis Foundation!

This is Taylor, she is my little guys best buddy! Our family just LOVES her! Taylor is an active 9 year old who loves to play soccer, ride her bike, dance hip-hop, draw and play with her friends and sister. She was diagnosed with cystic fibrosis when she was just 10 weeks old. Since then she and her family have been very active in the Cystic Fibrosis Foundation in hopes that there will be a cure in Taylor's lifetime.

In order for Taylor to stay "healthy" and hopefully out of the hospital, she must take enzymes with everything she eats so that she can properly digest her food. Taylor also must sit through 1 1/2 - 2 hours of breathing treatments and chest physical therapy every day to help break up the sticky mucus in her little body.

Taylor recently drew a picture for the Cystic Fibrosis Foundation's e-card program and was very excited when hers was picked. She titled it 65 Roses Rainbow because "65 Roses" is what some children with cystic fibrosis (CF) call their disease because the words are much easier for them to pronounce.

Mary G. Weiss became a volunteer for the Cystic Fibrosis Foundation in 1965 after learning that her three little boys had CF. Her duty was to call every civic club, social and service organization seeking financial support for CF research. Mary's 4-year-old son, Richard, listened closely to his mother as she made each call.

After several calls, Richard came into the room and told his Mom, "I know what you are working for." Mary was dumbstruck because Richard did not know what she was doing, nor did he know that he had cystic fibrosis. With some trepidation, Mary asked, "What am I working for, Richard?" He answered, "You are working for 65 Roses." Mary was speechless.

He could not see the tears running down Mary's cheeks as she stammered, "Yes Richard, I'm working for 65 Roses."

Since 1965, the term "65 Roses" has been used by children of all ages to describe their disease. But, making it easier to say does not make CF any easier to live with. The "65 Roses" story has captured the hearts and emotions of all who have heard it. The rose, appropriately the ancient symbol of love, has become a symbol of the Cystic Fibrosis Foundation.

Here's a simple and immediate way to support the mission of the CF Foundation, while also offering a thoughtful and meaningful way to celebrate a holiday, like Mother's Day, or other life event. Not only is this tax-deductible gift one that will “always fit,” it’s a gift that will be put to good use—to add tomorrows every day to the lives of those with cystic fibrosis.

To send your e-gift, go here now!


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